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Additional Kidney Transplant Resources

American Association of Kidney Patients
A national organization founded by kidney patients for kidney patients that provides information on chronic kidney disease, dialysis, transplant, support, advocacy services, educational programs and events, and more.
http://www.aakp.org/

Donate Life America
Information on organ donation including recipients’ stories.
http://www.donatelife.net

Home Dialysis Central
Information on home dialysis for patients, families and health professionals.
http://www.homedialysis.org

Kidney Options
Information on kidney disease, treatment options, diet and nutrition, social services, seminars listed by state, resource library and medical terminology.
http://www.kidneyoptions.com

National Kidney Foundation
A national organization that provides information about kidney disease, all types of dialysis, transplant, nutrition and diet, support for recipients and their families and friends, national statistics and more.
http://www.kidney.org

United Network for Organ Sharing
Organ Procurement and Transplantation Network
A non-profit, scientific, and education organization that administers the nations only Organ Procurement and Transplantation Network and offers the national data, news, and information regarding all types of organ transplants.
http://www.unos.org
http://www.optn.org

Transplant Living
Transplant Living provides support, resources, and information to anyone in the transplant experience.
http://www.transplantliving.org

American Organ Transplant Association
Provides information to help transplant patients lead happy, productive lives by helping them obtain and sustain transplants.
http://www.aotaonline.org

American Kidney Fund
Organization that provides direct financial assistance to kidney patients in need and education to those with and at risk for kidney disease.
http://www.kidneyfund.org

National Foundation for Transplants
Reaching out to help those who seek a new life through transplantation, by providing a program of healthcare and financial support services and patient advocacy for transplant candidates, recipients and their families nationwide.
http://www.transplants.org

Transplant Recipients International Organization
A transplantation and organ donation information website that provides resources, support, education and advocacy for transplant candidates, recipients, donors and their families.
http://www.trioweb.org

Transplant Experience

Offers resources, tools, tips, advice, and information for every stage of the transplant process including pre-transplant, the first year, and beyond.
http://www.transplantexperience.com

For additional information or to begin a kidney transplant evaluation at Barnes-Jewish Hospital, call .

Ambrose Perkins

Ambrose Perkins was an active father and grandfather. He enjoyed his job as a bus driver, and he especially loved fishing, spending much of his free time with a rod and reel. When hypertension caused his kidneys to fail, Ambrose's doctors told him a transplant was his best bet for a normal life. Because none of his family members were donor candidates, he went on the waiting list for a donor organ. One day, as Ambrose told his boss about his condition, his friend and co-worker, Kim Monroe, overheard and offered to donate her kidney. Ambrose thought she was kidding. But Kim made an appointment to be evaluated as a donor and drove to Barnes-Jewish for an extensive work up. It turned out that Kim's kidney was a close match for Ambrose. On Nov. 15, 2005, Kim underwent a mini-nephrectomy - a minimally invasive donor procedure developed at Barnes-Jewish, and Ambrose received her healthy kidney. Both were out of the hospital within a week. Thanks to the skill of his doctors, the support of the transplant center team, and the generosity of his co-worker, Ambrose is reeling in fish once again.

 

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