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Lung Transplant Patient Education & Support

The Washington University and Barnes-Jewish Transplant Center provides patients and caregivers with a wide range of education and support services. These resources guide you through the transplant process and help you return to a healthy, active life.

Sometimes, the details of a lung transplant can be overwhelming. Our experienced staff and your fellow transplant patients can provide the support you need.

Lung Transplant Education 

Education about the transplant process begins before we place you on the waiting list. This education is available through classes and one-on-one appointments with specialists, including transplant nurse coordinators, nutritionists and transplant pharmacists. Among the many topics addressed are:

  • Pretransplant care, including pulmonary rehabilitation before surgery
  • How the wait list works
  • What to do and where to go when we call you for transplant surgery
  • What to expect immediately after surgery, including post-surgery tests and rehabilitation
  • Medications you will take after transplant, including potential side effects
  • Signs of organ rejection
  • How we manage and treat organ rejection
  • What to expect at your follow-up appointments

Lung Transplant Support Groups 

A monthly Lung Transplant Support Group, run by a transplant social worker, can help you and your loved ones connect with people who are at various stages of transplant. Group leaders, members and guest speakers explore the physical and emotional concerns accompanying lung transplant. 

Some common topics we discuss include:

  • Lifestyle changes caused by transplant
  • Financial concerns associated with transplant
  • Transplant surgery
  • Side effects of medications
  • Fear of organ rejection

Mentorship Program

The Mentor Program at Barnes-Jewish Hospital provides information, guidance and emotional support throughout the transplantation process. Mentors are patients who have already successfully gone through transplant. These relationships can be a great source of wisdom and encouragement.

Lodging Information

Barnes-Jewish Hospital offers many convenient lodging options for our patients, both before and after transplant. On-campus and off-campus accommodations are available. Some off-campus hotels and apartments offer special rates for Barnes-Jewish Hospital patients. 

In some cases, insurance may cover lodging expenses related to the transplant. Call your insurance company to find out more or talk to one of our experienced financial counselors. For more information about lodging options and to receive special rates, please talk with your social worker.

Insurance for Lung Transplant

The Transplant Center accepts most insurance plans. However, please verify your coverage with your insurance provider. Once you have started the transplant evaluation process, one of our financial counselors is able to assist you with insurance issues.

Contact Us

For more information on the lung transplant program or to schedule an evaluation at Barnes-Jewish Hospital, call 866.888.9337.


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